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We are honoured to announce that Åsa Petersén has received a two-year grant from Hjärnfonden, The Swedish Brain Foundation, for the project The importance of variations in the CAG repeat for Huntington disease.The awarded amount for the two years is SEK 1 600 000.
https://www.huntington-research.lu.se/article/new-grant-hjarnfonden - 2025-11-19
Together with researchers from Germany, Canada, Turkey and the Czech Republic Åsa Petersén was awarded the JPND grant for the project Delineating the role of HTT Cis-Variants in the pathogenesis of Huntington disease. In Sweden the grant is funded by Vetenskapsrådet, the Swedish Research Council, and Petersén was awarded SEK 2 500 000.To initiate the project, a kickoff meeting was held in Istanbu
https://www.huntington-research.lu.se/article/jpnd-project-kickoff-istanbul - 2025-11-19
Åsa Petersén will participate in the HD patients' organization's national meeting later in September. The patients’ organization, RHS, is inviting you to the national meeting in Gothenburg on 26 September 2024. Åsa Petersén will give an overview of the current HD research and the day will include information on guidelines for physiotherapy, and much more. The meeting will be held in Swedish.Sign u
https://www.huntington-research.lu.se/article/rhs-national-meeting-2024 - 2025-11-19
Åsa Petersén is one of the lecturers at MultiPark Café in October. On Wednesday 16 October, at 17.00-19.00, MultiPark Café is hosting an evening with lectures on “Psychiatric health in neurodegenerative diseases”. Åsa Petersén will talk about “Psychiatric health in Huntington’s disease”.All talks are in Swedish.Link to the event on MultiPark’s website
https://www.huntington-research.lu.se/article/welcome-petersens-talk-psychiatric-health-hd - 2025-11-19
The Swedish patients' organization RHS is arranging a weekend on Huntingon disease for young adults on 18-20 October 2024 in Karlstad. During the weekend there will be presentations on various topics, like genetic counselling, and the weekend also offers an opportunity to network with other young adults and to share experiences.Åsa Petersén will give a talk on HD research and present the latest up
https://www.huntington-research.lu.se/article/petersen-will-give-talk-hd-young-adults - 2025-11-19
On 23 October 2024, Åsa Petersén will be moderating the webinar "Research insights: Latest updates on ongoing studies", arranged by the European Huntington Association. The webinar will give information on ongoing clinical trials in the Huntington disease field. Representatives from companies with ongoing trials, or finalized, will be participating.The European Huntington Association is an umbrell
https://www.huntington-research.lu.se/article/webinar-hd-clinical-trials - 2025-11-19
The webinar on clinical trials, with an overview of the latest developments, is now available to watch online. The webinar “Research insights: Latest updates on ongoing studies” was arranged by the European Huntington Association (EHA) in October.You find it on EHA:s website
https://www.huntington-research.lu.se/article/webinar-clinical-trials-now-available-online - 2025-11-19
Huntington Disease Center in Lund is inviting you to an information evening on 7 April 2025, 18.00-20.30 in the Belfrage lecture hall on BMC D15 in Lund. The evening will include update on clinical trials and current research status in Sweden and internationally, as well as talks on different aspects on Huntington disease: from social interaction to difficulty swallowing, dysphagia. Representative
https://www.huntington-research.lu.se/article/save-date-hd-information-evening-7-april-2025 - 2025-11-19
Sign up for the Information Evening on HD! If you wish to attend the Information Evening on Huntington Disease on 7 April 2025, sign up latest on 27 March 2025.All talks are in Swedish. Find out more on the Huntington Disease Center's page: Huntington Disease Center
https://www.huntington-research.lu.se/article/information-evening-hd-7-april-2025 - 2025-11-19
The European Huntington’s disease network (EHDN), with more than 3000 members, gather healthcare professionals, researchers and families with Huntington’s disease. Petersén was elected to the Executive Committee in 2022 and is now Deputy Chair.Link to the EHDN webpage: EHDN.org
https://www.huntington-research.lu.se/article/petersen-elected-deputy-chair-ehdn - 2025-11-19
Development of international guidelines for treatment of psychiatric symptoms in advanced Huntington's disease is in progress within the European Huntington's Disease Network (EHDN). The working group focusing on "Behavioural Phenotype” in Huntington's disease is addressing these guidelines. As part of the work, some members of the group recently met in Amsterdam, together with colleagues from USA
https://www.huntington-research.lu.se/article/work-progress-international-guidelines-treatment-psychiatric-symptoms - 2025-11-19
The month of May is Huntington’s Disease Awareness Month and 15 May was Huntington Awareness Day. Åsa Petersén was invited to take part in a podcast about the disease, together with Jozefine, who is a carrier of the gene and related to a person diagnosed with HD.The podcast is produced by YTAN, Young Together Against Neurodegenerative Diseases, a digital platform for young relatives of persons wit
https://www.huntington-research.lu.se/article/podcast-about-being-young-relative-hd-patient - 2025-11-19
The protein TDP-43 is involved in different neurodegenerative diseases, and Åsa Petersén and Sofia Bergh have investigated whether the protein harms the hypothalamus. Investigating if augmenting the quantity of the protein TDP-43 in the hypothalamus would lead to changes in the hypothalamus, emotional changes and metabolic problems was the aim of the new article from the TNU research group.Read mo
https://www.huntington-research.lu.se/article/new-paper-tnu-published - 2025-11-19
Åsa Petersén and Mahmoud A Pouladi are guest editors of the Special Issue: Glia and non-neuronal cells in Huntington's disease that was published now in August. The Special issue on Glia and non-neuronal cells in Huntington's disease holds six expert review articles. The understanding how glial and other non-neuronal cells shape HD pathology is expanding amongst researchers in the field.The topics
https://www.huntington-research.lu.se/article/petersen-guest-editor-journal-huntingtons-disease - 2025-11-19
Petersén will give a talk on her work on Huntington disease at a symposium on neurodegenerative disorders at the University of British Columbia in Vancouver, Canada on September 8, 2025. There will also be a meeting for Petersén and other partners in the JPND funded delCAA-HD research team to discuss progress of the international collaborative research efforts.
When in Sweden for their annual meeting, members of the European Huntington Association paid a visit to Lund on 28 August 2025. There they met with Åsa Petersén and Camilla Svensson, registered nurse, also working at the HD Clinic at Skåne University Hospital (SUS) in Lund, together with Åsa. Åsa showed them around the lab, demonstrated samples and talked about her research. The EHA team also got
https://www.huntington-research.lu.se/article/visit-european-huntington-association - 2025-11-19
On 9-11 September 2025 the Arturo Falaschi Conference “2nd biennial conference on TDP-43 function and dysfunction in disease” will be held in Trieste, Italy. Sofia Bergh will present her poster with the findings published earlier this summer in the article “TDP-43 overexpression in the hypothalamus drives neuropathology, dysregulates metabolism and impairs behavior in mice”.Link to the conference
https://www.huntington-research.lu.se/article/sofia-bergh-will-present-poster-tdp-43-conference - 2025-11-19
Åsa Petersén will give several talks at the conference, including one on emotions and behavior in HD, and she will also chair a session on clinical trials.The conference is arranged by the patients' organization, the European Huntington Association, and is open to all.Find out more about the conference on EHA:s webpage (opens in a new window).
https://www.huntington-research.lu.se/article/petersen-eha-conference-2025-bucharest - 2025-11-19
The National Board of Health and Welfare in Sweden has published updated information on Huntington disease on its’ webpage. These recent revisions of the text have been made by Professor Åsa Petersén, Lund University.Link to the National Board of Health and Welfare’s webpage – in Swedish only (opens in a new window).
https://www.huntington-research.lu.se/article/updated-information-hd-national-board-health-and-welfares-webpage - 2025-11-19
Professor Petersén comments on the recent positive topline results from a clinical trial with gene therapy in Huntington disease presented in a press release from uniQure. Last week, positive topline results from a clinical trial with gene therapy in Huntington disease were presented in a press release from uniQure. The news hit the headlines and spread fast through the HD community. Read Professo
https://www.huntington-research.lu.se/article/perspective-recent-positive-topline-results-gene-therapy-trial - 2025-11-19
