Published 23 January 2021 Large prospective cohort studies may offer an opportunity to study the etiology and natural history of rare cancers. Cancer diagnoses in observational cohort studies are often self-reported. Little information exists on the validity of self-reported cancer diagnosis, especially rare cancers, in Canada. This study evaluated the validity of self-reported cancer diagnosis in

https://www.lupop.lu.se/article/importance-cancer-registry-linkage-studying-rare-cancers-prospective-cohorts - 2025-03-16

Published 23 January 2021 Acquisition of data on clinical performance is essential to improve outcomes in surgery. Large, national datasets allow hospitals to monitor events involving patient safety, complications, and benchmark against peer hospitals and facilitate quality improvement (QI) development. Although clinical datasets are often preferable, administrative data also have potential for ac

https://www.lupop.lu.se/article/administrative-and-registry-databases-patient-safety-tracking-and-quality-improvement - 2025-03-16

Published 24 January 2021 A nationwide random sample of 500 children (6–17 years) diagnosed with depression between 1996 and 2016 was identified in the DPCRR. Psychiatric hospital records were reviewed and rated using an online checklist. The primary outcome was whether depressive symptoms and functional impairment documented in hospital records justified a depressive disorder diagnosis based on I

https://www.lupop.lu.se/article/validity-child-and-adolescent-depression-diagnoses-danish-psychiatric-central-research-register - 2025-03-16

Published 24 January 2021 A cross sectional study was piloted at a tertiary hospital and a secondary level hospital in Botswana. The study consisted of two stages: stage 1 - stakeholders' consultation and trauma registry prototype was designed. Stage 2 consisted of two phases: Phase I involved retrospective collection of existing data from existing data collection tools and Phase II collected data

https://www.lupop.lu.se/article/developing-trauma-registry-middle-income-country-botswana - 2025-03-16

Published 25 January 2021 A nationwide random sample of 500 children (6–17 years) diagnosed with depression between 1996 and 2016 was identified in the DPCRR. Psychiatric hospital records were reviewed and rated using an online checklist. The primary outcome was whether depressive symptoms and functional impairment documented in hospital records justified a depressive disorder diagnosis based on I

https://www.lupop.lu.se/article/validity-child-and-adolescent-depression-diagnoses-danish-psychiatric-central-research-register-0 - 2025-03-16

Published 10 April 2018 Anna Tegunimataka awarded prize for best dissertation at LUSEM Anna Tegunimataka, who finished her PhD in economic history last June, has been awarded the Färs and Frosta Prize for best doctoral dissertation at LUSEM. The prize is 100,000 SEK. The titel of her thesis is: Trajectories of Integration: Naturalization, Intermarriage and Education in Denmark, 1980-2015

https://www.lupop.lu.se/article/population-research-awarded-fars-and-frosta-prize - 2025-03-16

Published 11 April 2018 The Swedish Research Council and NSFC will have joint administration of the call and make a joint decision by using a panel consisting of both Swedish and Chinese evaluators. More information here.

https://www.lupop.lu.se/article/research-project-grant-research-collaboration-between-china-and-sweden - 2025-03-16

Published 4 February 2021 Right before the Christmas Holidays on the 17th of December 2020 the EOSC Association held its very first General Assembly. The EOSC Association has put a Governance in place - EOSC-Nordic (eosc-nordic.eu)

https://www.lupop.lu.se/article/eosc-association-has-put-governance-place - 2025-03-16

Published 5 February 2021 Från och med 2021 gör Vetenskapsrådet en ny indelning av beredningsgrupperna inom naturvetenskap och teknikvetenskap. Syftet är att få en jämnare fördelning av ansökningar mellan dem. Ny indelning av beredningsgrupper inom naturvetenskap och teknikvetenskap - Vetenskapsrådet (vr.se)

https://www.lupop.lu.se/article/ny-indelning-av-beredningsgrupper-inom-naturvetenskap-och-teknikvetenskap - 2025-03-16

Published 8 February 2021 Sverige var först i Europa med att lansera en nationell dataportal för forskning om covid-19. Portalen har växt i takt med att fler forskningsprojekt har tillgängliggjort sina data, nya projekt har startat och nya datatjänster etablerats. Scilifelab driver portalen i samverkan med Vetenskapsrådet. Den svenska covid-19-dataportalen växer - Vetenskapsrådet (vr.se)

https://www.lupop.lu.se/article/den-svenska-covid-19-dataportalen-vaxer - 2025-03-16

Published 8 February 2021 The relative new subspecialty 'cardio-oncology' was established to meet the growing demand for an interdisciplinary approach to the management of cancer therapy-related cardiovascular adverse events. In recent years, specialised cardio-oncology services have been implemented worldwide, which all strive to improve the cardiovascular health of cancer patients. However, limi

https://www.lupop.lu.se/article/oncor-design-dutch-cardio-oncology-registry - 2025-03-16

Published 8 February 2021 The acquisition rate during 2012–2018 was compared with Swedish national databases, while registered data in 89 selected variables (67 mandatory) was compared with medical records of 1860 randomly selected patients from all bariatric centers (n = 39–43) reporting to SOReg. The evaluation was done by 1 independent observer. Completeness of data in the entire registry for t

https://www.lupop.lu.se/article/high-acquisition-rate-and-internal-validity-scandinavian-obesity-surgery-registry - 2025-03-16

Published 9 February 2021 The premise of Open Science is that research and medical management will progress faster if data and knowledge are openly shared. The value of Open Science is nowhere more important and appreciated than in the rare disease (RD) community. Research into RDs has been limited by insufficient patient data and resources, a paucity of trained disease experts, and lack of therap

https://www.lupop.lu.se/article/case-open-science-rare-diseases - 2025-03-16

Published 17 February 2021 FCR data are based on independent cancer report forms (CRFs) from both clinicians and pathologists. Data from patients diagnosed with CRC during a randomized, population-based CRC screening program between 2004 and 2012 were extracted from the FCR and compared to data extracted from the original clinical patient records of these individuals by two gastrointestinal surgeo

https://www.lupop.lu.se/article/accuracy-finnish-cancer-registry-colorectal-cancer-data-comparison-between-registry-data-and - 2025-03-16

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 17 February 2021 Den 10 februari höll SND ett webbinarium om verksamhetsarkitektur och forskningsdata. Webbinariet anordnades av Monica Lassi (Lunds universitet) och Mikael Wettercrantz (Karolinska institutet). De berättade om metoder och erfarenheter av att skapa överblick inom sina respektive verksamheter, och det nationella

https://www.lupop.lu.se/article/lokalt-projekt-blev-nationellt-samarbete-okad-samsyn-inom-forskningsdataomradet - 2025-03-16

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 18 February 2021 I den årliga öppna utlysningen välkomnar Formas ansökningar inom rådets tre ansvarsområden – miljö, areella näringar och samhällsbyggande. Syftet med utlysningen är att möjliggöra för forskare att angripa forskningsbehov som de själva identifierat. Utlysningen öppnar för ansökningar 25 februari. Sista ansöknin

https://www.lupop.lu.se/article/formas-arliga-oppna-utlysning - 2025-03-16

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 25 February 2021 Umeå universitet hävdar att man äger den forskningsdata som lärosätets forskare tar fram. SULF menar tvärtemot att universitetet inte har någon äganderätt till datan. Frågan har varit uppe till central förhandling som slutat i oenighet. Läs mer på https://universitetslararen.se/2021/02/25/umea-universitet-vill

https://www.lupop.lu.se/article/umea-universitet-vill-aga-forskares-data - 2025-03-16

Published 18 April 2018 Registration required only for those who want coffee during the break. Tomorrow's seminar will include presentations on Lund University biobank as well as EpiHealth. Read more at lupop.lu.se or facebook.com.

https://www.lupop.lu.se/article/lupop-seminar-biobanks-and-epihealth - 2025-03-16

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 26 February 2021 Join in on a conversation with Professor Per Ambrosiani from the Department of Language Studies and Sanna Isabel Ulfsparre, librarian at the Umeå University Library. The conversation covers what counts as data, and how you make research data accessible. How does it feel to make data accessible to the world and

https://www.lupop.lu.se/article/enabling-research-research-data-future-use - 2025-03-16

Published 2 March 2021 Comorbidities often play an important role in health outcomes and survival. They may also influence the relationship between various exposures and other health outcomes as well as quality of life for a given condition. In epidemiology, two main approaches to adjust for comorbidity can be discerned: (I) adjusting for separate disorders or (II) creating a numeric index that ca

https://www.lupop.lu.se/article/adaptation-charlson-comorbidity-index-register-based-research-sweden - 2025-03-16